10/06/2026
Publication in Alzheimer's and Dementia: Diagnosis, Assessment and Disease Monitoring
New EPND research compares CSF biomarkers across Alzheimer’s disease, dementia with Lewy bodies and ...
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09/10/2026
EPND Lay Glossary
EPND's Lay Glossary includes terms relating to neurodegeneration research, with accessible explanati...
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07/17/2026
Microbiome dataset
The microbiome dataset includes data from 1152 subjects from 3 research cohorts and is now accessibl...
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05/01/2026
Deliverable 2.3: White Paper V2.0
This deliverable report describes the EPND Hub, focusing on access governance and legal compliance, ...
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03/20/2026
Deliverable 6.6: Interim Patient Expert Group report on EPND platform and principles for health data and sample sharing
This deliverable summarises feedback provided by the EPND Patient Expert Group on the topic of princ...
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02/16/2026
PRISM2 dataset and biosample collection
The PRISM2 dataset and biosample collection span Alzheimer's disease, schizophrenia and major depres...
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11/14/2025
Complement datasets
The complement dataset includes complement measures across four platforms for 350 participants from ...
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11/01/2025
Deliverable 3.5: Landscape of the best practices of digital biomarker collections
This deliverable report evaluates current best practices for collecting, storing, and analysing digi...
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10/30/2025
Deliverable 4.5: Summary metadata of 60+ cohorts from the catalogue, 30 cohorts linked to record-level discovery tool
This deliverable reports cohort onboarding, metadata collection and federated discovery, documenting...
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10/29/2025
Deliverable 1.5: Online Demonstration Of Record-Level Discovery Service, Including At Least 20 Participating Cohorts/Biobanks
This deliverable presents the EPND Federated Discovery Pilot, enabling searches across catalogues us...
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09/17/2025
Deliverable 1.6: Online demonstration of sample and data request service
This deliverable demonstrates workflows for requesting data and biosamples through the EPND Hub, acc...
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08/07/2025
EPND Newsletter | Summer 2025
The Summer 2025 issue of the EPND e-newsletter highlights the release of our ATN biomarker dataset, ...
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08/04/2025
EPND Newsletter | Summer 2026
The Summer 2026 issue of the EPND e-newsletter highlights the biomarker case studies and datasets, a...
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05/22/2025
ATN biomarker dataset
The ATN biomarker dataset includes data from 350 participants drawn from 10 research cohorts across ...
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05/19/2025
ELSI Support Desk
EPND's ELSI Support Desk is a dedicated resource for researchers navigating the ethical, legal, and ...
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05/01/2025
Deliverable 5.1: Report on ATN markers
This deliverable report describes the logistics, methods and results of EPND's first biomarker Case ...
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04/09/2025
Publication in Alzheimer's and Dementia: Translational Research & Clinical Interventions
Biomarkers for neurodegenerative diseases in regulatory decision‐making by the European Medicines Ag...
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02/04/2025
Frontiers in Dementia publication
Informed consent in dementia research: how Public Involvement can contribute to addressing “old” and...
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12/18/2024
Deliverable 1.3: Online demonstration of the first ETL & FAIRification tools importing data into the platform
This deliverable report outlines the harmonisation process for importing data and metadata to the EP...
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12/11/2024
EPND Newsletter | Winter 2024
The December 2024 issue of the EPND e-newsletter highlights the launch of our technical Hub, and inc...
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08/22/2024
Deliverable 1.4: Online demonstration of resource-level (catalogue) discovery service, with at least 30 participating cohorts/biobanks
This deliverable describes the EPND Catalogue and metadata models that enable researchers to discove...
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07/29/2024
Publication in the Journal of Translational Medicine
Facilitating the use of the target product profile in academic research: a systematic review...
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07/23/2024
Application procedure for the EPND Call
Learn more about the application procedure for the EPND Call for Expressions of Interest, including ...
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06/30/2024
Deliverable 6.3: Roadmap and tools for stakeholder engagement
This deliverable report outlines the EPND approach to stakeholder engagement and involvement, focusi...
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05/14/2024
EPND Newsletter | Summer 2024
The Summer 2024 issue of the EPND e-newsletter includes the latest project updates, with articles on...
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05/04/2024
Deliverable 1.2: Online publication EPND glossary, core data models and metadata specifications as a FAIR implementation profile
This deliverable describes the EPND Glossary, a common data model and metadata specifications suppor...
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05/01/2024
Deliverable 2.2: White Paper V1: Gaps and Requirements
This deliverable report maps the legal, governance & sustainability challenges that EPND may be face...
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03/07/2024
EPND Catalogue User Guide
Step-by-step instructions to make research discoverable on the EPND Catalogue ...
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03/07/2024
The EPND Catalogue
Explore improved visibility and discoverability of an expanded research collection in the enhanced E...
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02/01/2024
Publication in the Journal of the Law and Biosciences
Purpose definition as a crucial step for determining the legal basis under the GDPR: implications fo...
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01/09/2024
Nature Aging publication
Cerebrospinal fluid proteomics in patients with Alzheimer’s disease reveals five molecular subtypes ...
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12/20/2023
Watch the Biobanking Best Practices and Standard Operating Procedures webinar
This webinar featured presentations of our SOPs and Best Practice guides, to support researchers in ...
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10/03/2023
Register for our Workshop on Biomarker Best Practices
This public workshop, organised by EPND's Biomarker workstream, will share standard operating proced...
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08/25/2023
EPND Newsletter | Launch issue
The launch issue of the EPND e-newsletter introduces the EPND Catalogue, with features highlighting ...
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07/05/2023
Deliverable 3.2: Best practices for biobanking
This report provides guidance on harmonisation and standardisation of biosamples, addressing challen...
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07/05/2023
Deliverable 3.3: SOP for body materials collection
This SOP provides guidance on procedures for collecting different types of biosamples, including pla...
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07/05/2023
Deliverable 3.4: SOP for biomarker validation
This technical protocol identifies key parameters for the validation of fluid-based biomarkers...
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05/19/2023
Deliverable 3.1: SOP minimal dataset for data glossary
This SOP defines a minimal data model that captures key clinical variables and sample annotation var...
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04/03/2023
EPND poster at AD/PD conference
An ePoster on EPND was presented at the 2023 AD/PD conference...
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12/15/2022
Frontiers in Neurology publication
Data and sample sharing as an enabler for large-scale biomarker development: the EPND perspective...
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11/16/2022
Deliverable 2.1: Data Protection Impact Assessment
Identifying, assessing and addressing privacy risks: the EPND DPIA ...
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05/04/2022
Deliverable 8.3: Data Management Plan
This deliverable sets out EPND’s initial Data Management Plan, covering FAIR data, access, security,...
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08/02/2021
CSF Proteomic Alzheimer's Disease
Predictive Subtypes in Cognitively Intact Amyloid Negative Individuals...
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