Resources from the EPND Consortium, including project deliverables, scientific publications and related papers.
Follow along as our work unfolds. Check back for updates, events, and publications.
05/01/2026
Deliverable 2.3: White Paper V2.0
This deliverable report describes the EPND Hub, focusing on access governance and legal compliance, ...
Read more02/12/2026
Deciphering the choroid plexus: an EPND interview with Aurore Delvenne
Aurore Delvenne, a researcher at Maastricht University, will be presenting the findings of her analy...
Read more02/09/2026
Advancing precision psychiatry: interview with PRISM2 co-Lead, Martien Kas
The PRISM2 dataset and biosample collection are now requestable through the EPND Hub. To learn more ...
Read more01/13/2026
IHI launches ACCESS-AD, a new initiative aiming to advance timely diagnosis and equitable treatment
The Innovative Health Initiative has just launched ACCESS-AD, to advance timely diagnosis and equita...
Read more11/10/2025
EPND convenes its 4th Annual Meeting
Last month, EPND convened its 4th Annual Meeting in Brussels, Belgium: celebrating recent achievemen...
Read more11/01/2025
Deliverable 6.6: Interim Patient Expert Group report on EPND platform and principles for health data and sample sharing
This deliverable summarises feedback provided by the EPND Patient Expert Group on the topic of princ...
Read more11/01/2025
Deliverable 3.5: Landscape of the best practices of digital biomarker collections
This deliverable report evaluates current best practices for collecting, storing, and analysing digi...
Read more10/02/2025
Watch our Webinar: Advancing Biomarker Science with EPND
EPND recently hosted a webinar showing how our platform for data and biosample sharing can accelerat...
Read more08/07/2025
EPND Newsletter | Summer 2025
The Summer 2025 issue of the EPND e-newsletter highlights the release of our ATN biomarker dataset, ...
Read more08/01/2025
EPND research showcased at 2025 AAIC conference in Toronto
EPND partners presented updates on their work at the 2025 Alzheimer Association International Confer...
Read more06/25/2025
Watch the EPND Webinar: Introducing the EPND Hub, a unified platform for data and sample sharing
EPND recently hosted a webinar introducing the EPND Hub - a secure environment designed to accelerat...
Read more06/25/2025
Register for our second public webinar of 2025: Advancing biomarker science with EPND
EPND is hosting a 2nd webinar in its public series, taking place on Thursday 10 July. This one-hour ...
Read more05/22/2025
ATN biomarker dataset
The ATN biomarker dataset includes data from 350 participants drawn from 10 research cohorts across ...
Read more05/22/2025
New ATN biomarker dataset now available on the EPND Hub
The European Platform for Neurodegenerative Diseases (EPND) has released its first harmonised biomar...
Read more05/19/2025
ELSI Support Desk
EPND's ELSI Support Desk is a dedicated resource for researchers navigating the ethical, legal, and ...
Read more05/19/2025
EPND’s ELSI Support Desk: helping researchers to navigate ethical and legal requirements for data and biosample sharing
EPND has launched a new ELSI Support Desk to support researchers in navigating the ethical, legal, a...
Read more05/01/2025
Deliverable 5.1: Report on ATN markers
This deliverable report describes the logistics, methods and results of EPND's first biomarker Case ...
Read more04/11/2025
Insights on advancing collaborative research: register for the first webinar in our 2025 public series!
Join us for the first webinar in EPND’s 2025 public series and discover how the EPND Hub's technical...
Read more04/09/2025
Publication in Alzheimer's and Dementia: Translational Research & Clinical Interventions
Biomarkers for neurodegenerative diseases in regulatory decision‐making by the European Medicines Ag...
Read more04/03/2025
EPND at AD/PD: interview with Audrey Hermans
Our CBG-MEB partner Audrey Hermans, presented her PhD research at AD/PD 2025, in Vienna. In this int...
Read more04/02/2025
EPND at AD/PD: interview with Rajaraman Krishnan
Our Sanofi partner, Ram Krishnan, presented some of EPND's latest biomarker research findings at AD/...
Read more02/04/2025
Frontiers in Dementia publication
Informed consent in dementia research: how Public Involvement can contribute to addressing “old” and...
Read more12/12/2024
Cohort Profile: the gMAD/COSCODE study
The gMAD/COSCODE study, led by Prof. Giovanni Frisoni (University of Geneva) is investigating the mo...
Read more12/11/2024
EPND Newsletter | Winter 2024
The December 2024 issue of the EPND e-newsletter highlights the launch of our technical Hub, and inc...
Read more12/11/2024
EPND launches the EPND Hub - a unified gateway for discovery, access and sharing of datasets and biosamples
Today, we are excited to launch the EPND Hub, a major expansion of our data and biosample catalogue ...
Read more11/21/2024
EPND's 3rd Annual Meeting: advancing collaboration in neurodegeneration research
A few weeks ago, EPND convened its 3rd Annual Meeting in Madrid, Spain: celebrating recent achieveme...
Read more10/10/2024
EPND showcased at special symposium during 34th annual Alzheimer Europe conference
The 34th annual Alzheimer Europe conference showcased several initiatives that are shaping the futur...
Read more09/05/2024
The EPND biomarker case studies: an interview with Marianna Rizzo and Stephanie Vos
Our latest biomarker research results were presented at AAIC in August, by our Maastricht University...
Read more07/29/2024
Publication in the Journal of Translational Medicine
Facilitating the use of the target product profile in academic research: a systematic review...
Read more07/23/2024
Application procedure for the EPND Call
Learn more about the application procedure for the EPND Call for Expressions of Interest, including ...
Read more07/23/2024
EPND launches Call for Expressions of Interest
EPND has launched an open Call for Expressions of Interest to leverage neurodegeneration biosamples ...
Read more06/30/2024
Deliverable 6.3: Roadmap and tools for stakeholder engagement
This deliverable report outlines the EPND approach to stakeholder engagement and involvement, focusi...
Read more05/14/2024
EPND Newsletter | Summer 2024
The Summer 2024 issue of the EPND e-newsletter includes the latest project updates, with articles on...
Read more05/01/2024
Deliverable 2.2: White Paper V1: Gaps and Requirements
This deliverable report maps the legal, governance & sustainability challenges that EPND may be face...
Read more04/26/2024
Transdisciplinary EPND glossary presented at 2024 ADI conference
Our partner Marina Boccardi of DZNE presents the EPND Glossary, a tool designed to enhance transdisc...
Read more04/18/2024
Cohort Profile: the OPDC Discovery study
The OPDC Discovery study looks at how movement and cognition changes with normal ageing and during t...
Read more03/07/2024
EPND Catalogue User Guide
Step-by-step instructions to make research discoverable on the EPND Catalogue ...
Read more03/07/2024
EPND featured at the AD Data Initiative symposium
Our co-Lead, Phil Scordis, shared the mission, goals and outcomes of EPND at the AD/PD conference, d...
Read more03/07/2024
The EPND Catalogue
Explore improved visibility and discoverability of an expanded research collection in the enhanced E...
Read more03/04/2024
Sponsored symposium at AD/PD 2024 features EPND
Our project co-Lead, Phil Scordis, will present EPND at a sponsored symposium on data and sample sha...
Read more02/01/2024
Publication in the Journal of the Law and Biosciences
Purpose definition as a crucial step for determining the legal basis under the GDPR: implications fo...
Read more01/30/2024
IHI launches a new interdisciplinary initiative to help prevent and treat Alzheimer’s disease at scale
EPND congratulates consortium partners on the launch of AD-RIDDLE...
Read more01/11/2024
Research blog: analysis of CSF biomarkers reveals five molecular subtypes of AD
In a new Nature Aging paper, EPND researchers characterise five molecular subtypes of Alzheimer's di...
Read more01/09/2024
Nature Aging publication
Cerebrospinal fluid proteomics in patients with Alzheimer’s disease reveals five molecular subtypes ...
Read more12/20/2023
Watch the Biobanking Best Practices and Standard Operating Procedures webinar
This webinar featured presentations of our SOPs and Best Practice guides, to support researchers in ...
Read more11/17/2023
EPND participates in multi-project public involvement event
At the first event of its kind, EPND engaged with people affected by Alzheimer's disease and related...
Read more10/18/2023
EPND featured at the 33rd Alzheimer Europe conference in Helsinki
EPND was featured at a Special Symposium on new discoveries from shared data, at the 33rd Annual Alz...
Read more10/08/2023
EPND biomarker best practices workshop: meet the speakers!
Meet the EPND experts in biomarker discovery, development, validation, who will share learnings and ...
Read more10/03/2023
Register for our Workshop on Biomarker Best Practices
This public workshop, organised by EPND's Biomarker workstream, will share standard operating proced...
Read more09/21/2023
World Alzheimer's Day research blog: a new screening workflow for Alzheimer's disease
In a special feature for World Alzheimer's Day, we discuss a recent implementation study that has id...
Read more08/25/2023
EPND Newsletter | Launch issue
The launch issue of the EPND e-newsletter introduces the EPND Catalogue, with features highlighting ...
Read more08/09/2023
EPND featured at 2023 Alzheimer's Association International Conference
EPND was well-represented at this year's AAIC conference, with posters and a presence in the exhibit...
Read more07/06/2023
EPND partner profile: Charlotte Teunissen
Professor Teunissen is an expert on biomarkers for Alzheimer's disease and multiple sclerosis, leadi...
Read more07/05/2023
Deliverable 3.4: SOP for biomarker validation
This technical protocol identifies key parameters for the validation of fluid-based biomarkers...
Read more07/05/2023
Deliverable 3.3: SOP for body materials collection
This SOP provides guidance on procedures for collecting different types of biosamples, including pla...
Read more07/05/2023
Deliverable 3.2: Best practices for biobanking
This report provides guidance on harmonisation and standardisation of biosamples, addressing challen...
Read more05/24/2023
Cohort Profile: the BF-PilotAD Study
This cohort profile features the BF-PilotAD cohort, part of the Swedish BioFINDER study. ...
Read more05/19/2023
Deliverable 3.1: SOP minimal dataset for data glossary
This SOP defines a minimal data model that captures key clinical variables and sample annotation var...
Read more04/30/2023
Parkinson's Awareness Month research blog: PPMI study published in Lancet Neurology
In a final feature for Parkinson's Awareness Month, we present the results of a groundbreaking new b...
Read more04/25/2023
EPND partner profile: Michele Hu
An interview with Professor Michele Hu, a leading Parkinson's disease researcher and co-principal in...
Read more04/17/2023
Una entrevista con la Federación Española de Parkinson y el Grupo Asesor de Parkinson
En este artículo especial con motivo del Mes de Concienciación sobre el Parkinson, hablamos con el p...
Read more04/17/2023
An interview with the Spanish Parkinson's Federation, and the EPND Parkinson's Advisory Group
In a special article for Parkinson's awareness month, we speak to the president of the Spanish Parki...
Read more04/03/2023
EPND poster at AD/PD conference
An ePoster on EPND was presented at the 2023 AD/PD conference...
Read more12/22/2022
Registration still open for Luxembourg conference on precision medicine in Parkinson's disease
26 - 27 January 2023: conference on "Precision medicine in Parkinson's Disease: past lessons and con...
Read more12/15/2022
Frontiers in Neurology publication
Data and sample sharing as an enabler for large-scale biomarker development: the EPND perspective...
Read more12/15/2022
EPND Annual Meeting welcomes collaborators from our 29 partner organisations
Project consortium members gather in Amsterdam for the first EPND Annual Meeting...
Read more11/21/2022
Patient privacy and the GDPR - an interview with Adrian Thorogood
Patient privacy and the GDPR: an EPND interview with Adrian Thorogood...
Read more11/16/2022
Deliverable 2.1: Data Protection Impact Assessment
Identifying, assessing and addressing privacy risks: the EPND DPIA ...
Read more09/21/2022
Patient and caregiver perspectives on research and data sharing: Chris Roberts & Jayne Goodrick
Nothing about us, without all of us: an EPND interview with Chris Roberts and Jayne Goodrick...
Read more08/09/2022
Headlining at AAIC: recommendations for using blood-based biomarker tests in Alzheimer's disease
International Workgroup issues recommendations for the clinical use of blood-based biomarkers in Alz...
Read more08/05/2022
Biomarker research and science policy: an interview with our newest PhD students, Marianna Rizzo and Audrey Hermans
An EPND interview with Marianna Rizzo and Audrey Hermans...
Read more07/08/2022
EPND partners organise AAIC workshop on fluid biomarkers in Alzheimer's disease
AAIC workshop on fluid biomarkers features EPND partners, Charlotte Teunissen and Henrik Zetterberg...
Read more06/20/2022
Job opening at BBMRI-ERIC for a Legal Expert
BBMRI-ERIC is recruiting a Legal Expert to join its ELSI team and contribute to EPND and other proje...
Read more02/07/2022
2022 AD/PD Conference
Annual AD/PD conference to feature several EPND partners ...
Read more02/04/2022
New biomarker study published in JAMA Neurology
Large-scale biomarker study provides new prevalence estimates for Alzheimer’s disease brain patholog...
Read more11/29/2021
Alzheimer Europe 2021 Conference
This year’s conference will be held under the motto “Resilience in dementia: Moving beyond the COVID...
Read more11/02/2021
EPND Press Release
New European initiative will build a collaborative platform for data and sample sharing, to accelera...
Read more08/02/2021
CSF Proteomic Alzheimer's Disease
Predictive Subtypes in Cognitively Intact Amyloid Negative Individuals...
Read more